An Evidence-Based Framework for Patient and Family Engagement
Recorded On: 01/31/2017
Patient and family engaged care (PFEC) is care that is planned, delivered, and managed in partnership with patients and their families in a way that reflects their preferences and values. This approach to care is a shift in the role patients and families play on their own care teams, as well as in quality improvement and care delivery efforts. Currently barriers exist in most settings that prevent organizations from creating a culture that is driven by patient and family engagement.
To address these barriers, the US National Academy of Medicine convened a Scientific Advisory Panel to compile and disseminate important insights on culture change strategies that facilitate patient engagement with validated results tied to better outcomes, better care, greater value and greater joy in practice. To achieve this goal, the Panel drew on both the scientific evidence and the lived experiences of patients, families, and healthcare practitioners to develop a comprehensive framework for creation of a culture of PFEC.
This resulting National Academy discussion paper includes research supportive of the elements of the model and a bibliography within each topic area. The paper introduces the framework and associated evidence, along with practical examples, with the goal of supporting action that will support PFEC. Widespread dissemination of the framework is underway currently, and on-going updates to the evidence-base will be added in order to keep the model evolving.
Our aspirations for a sustainable culture of patient-engaged care requires an understanding that all stakeholder groups are part of the solution. The behaviors and altitudes of patients, clinical staff, and leadership create the culture of healthcare delivery. Culture change efforts must be informed by the experiences of all who interact with the system. Having a framework that identifies how to manage culture change, along with a compilation of supportive evidence is essential.
Susan B. Frampton, PhD, President, Planetree